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Why We Will Never Get Over It

A point of frustration for many bereaved parents after child loss is feeling like we are being judged for still missing our children.

There are some people around us who think we should be “moving on” or be “over it” by now, as if the death of our child is like a bad cold. Yes, the death of our child was an event, a moment in time. But that moment has disfigured us for the rest of our lives.

Having one’s child die is more than something bad that happened a few weeks ago, or months ago, or even years ago. The death of our child is a continual occurrence. Every morning when we wake up, at some point the realization hits us that our child is no longer here and will not be part of our day. It can feel like they died all over again.

Every event can feel like another death of our child.

  • Getting rid of a car that our child rode in can be agonizing because we will no longer have that car which attaches us to those memories.
  • There are meals we can no longer make (or eat) because it is too painful to be reminded that our child is not there to share their favorite food with us.
  • Seeing a pair of shoes displayed in a store can send us bolting to the car in tears, realizing that we will never again buy our child another pair for a sport they were in or for special occasions.
  • Hearing a certain song come on the radio can force us to the side of the road, unable to drive because we can’t see through our tears, even after we quickly turned it off.
  • Any and every event we attend (or are even invited to) is a reminder of who is missing. It can feel brutal seeing others who are our child’s age hitting life’s milestones that we will never get to experience with our child.

The death of one’s child is considered by most professionals to be one of the most (if not the most) traumatic event a person can deal with in life. Many parents also deal with PTSD, based on the circumstances of their child’s death.

I don’t think anyone can deny that it is a traumatic experience to walk behind your child’s casket and bury them, or to bring your child home as ashes in an urn. And for those parents who found their child’s body, or many other possible scenarios, they can also have PTSD.

Most of us are not stuck in our grief because we refuse to move on with our lives without our child. We are “stuck” because of being surrounded by constant reminders of our child who should be here as part of our everyday lives, but instead there is silence and a constant emptiness.

We do eventually learn to cope, but we don’t “get over it.”

If someone has an amputation, first they must heal, both physically and emotionally, from having that body part cut off; and the emotional healing takes much longer than the physical.

Then they must learn how to function and do everything differently with that part of them missing. Even when that happens, they are reminded multiple times a day that a body part has been cut off, because of how they are forced to live differently, in a way that helps them adapt to the loss.

Some days it is easy, some days it is a struggle to stay positive, and other days it hits them full force (almost like it just took place), no matter how long ago the amputation happened.

How do I know this? Our daughter, Becca, had her left leg amputated at only three years old because of cancer, so we had a front row seat to an amputee living day-to-day life.

As a bereaved parent, we have had our child amputated from us, and everything that an amputee must go through, we do as well. However, the emotional pain is multiplied and much more intense losing an entire person who is part of you, than losing something that is physically part of you, like a leg or an arm.

Several years ago, when I was working on one of my books, I was accused by someone that I was writing it as a way to continue dragging up the past instead of going forward. Wow!  First, I was writing the book to give hope to others who found themselves in the same suffocating pit that I had been thrown into, letting them know we can find our way out. Secondly, it was not dragging up the past; it was helping me learn how to cope with living in the present and in the future without my daughter.

Studies have shown that for those who have lost a child, anything under five years is considered fresh grief. So, I am not surprised when a bereaved parent does not believe they will ever have a life worth living again. I know I didn’t believe it.

However, we do eventually get stronger as we learn how to carry the grief in a way that does not feel like a heavy darkness every minute of the day. We will never get over our loss as if it never happened. That is impossible. But we can and will get over to the other side of the darkness, able to live a life of meaning and purpose again. This is not in spite of our child’s death, but because of his or her life.

 

This blog was taken from the Grieving Parents Sharing Hope podcast episode 194, which has more shared on this topic. You can listen here on YouTube. To listen directly on the GPS Hope website click here or find the Grieving Parents Sharing Hope podcast on your favorite listening app.

NOTE: Some of this was taken from Laura’s book Come Grieve Through Our Eyes: How to Give Comfort and Support to Bereaved Parents. To find out more about this book, along with Laura’s other books click here.

 

Expressions of Hope is provided by Grieving Parents Sharing Hope (GPS Hope). The founders, Dave and Laura Diehl, travel full time in their Hope Mobile (a 38-foot motor home) to be more easily available for speaking and ministry requests, and bringing intimate weekend retreats to bereaved parents. Laura is also a singer/songwriter and the author of multiple award-winning books.

If you would like more information about bringing Dave and Laura to you for an event, please send an email to office@gpshope.org.

If you are interested in bringing GPS Hope to your area for a weekend retreat click here.

 

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Deep Grief Leaves Deep Scars

When we are deeply wounded, a scar is left behind. That happens both physically and emotionally.

When I was around three years old, my dad took my sister and me on a bike ride around the neighborhood at my grandma’s house. We had done it before. My sister was sitting behind him, and I was sitting in front of my dad as he was pedaling the bicycle. This one time, when he turned the wheel, I didn’t spread my legs far enough and got my ankle caught in the bike spokes. It took out a chunk of my ankle, and I ended up with a staph infection.

It took me out of commission for quite some time, and I didn’t get to play in the water that summer. I had to sit on the edge of the pool with my injured ankle wrapped in a plastic bread wrapper to make sure it stayed dry. We have a picture of me dangling my non-injured leg in the water while watching my sister and cousins splash around having fun.

I recovered, but I still have a scar on my ankle and always will.

At age forty-eight, my husband, Dave, ended up having quadruple bypass surgery. Recovery took a long time, and over ten years later he still has some effects from it and is on certain medications for the rest of his life. He also has a permanent scar, reminding us what he went through.

If you have been connected to GPS Hope for very long, you know that my daughter, Becca, had her leg amputated when she was only three years old because of bone cancer. (She died at age twenty-nine due to long-term heart damage from one of the chemo drugs given to her at that time.) Obviously, she had a scar on her stump from the amputation.

Becca’s missing leg can be a good illustration for to us, as bereaved parents. Having our child die is like having an amputation; a part of our very being has been cut off from us. The wound is severe, but it will eventually heal, but there will always be a scar, reminding us that a part of our very being is missing.

But the comparisons don’t stop at the scar of the injury.

Did having a staph infection in my ankle keep me from ever riding a bike or swimming again? No way! I loved riding a bike, especially as a kid (although I recently switched to enjoying riding my mini Segway) and I love to swim and be in the water, especially in warm places with beautiful beaches.

Did having quadruple bypass surgery keep Dave from permanently doing things like holding and playing with his grandchildren, or starting new adventures like selling our house and learning how to drive a 38-foot motor home that we now live in? Nope!

Did having an amputation keep Becca from running and playing with the other children? No, it definitely did not! It may have slowed her down and caused her to adapt to how she ran and how she played, but it didn’t stop her.

When these horrible things happen, including something as terrible as the death of our child, does it mean our life is over, and we will never be able to live a full life again? No, it doesn’t.

We need time to go through a “recovery” process (for lack of a better word) and need time to learn how to function with our child no longer here, but it doesn’t mean we will never be able to function again.

  • We will go through times when everyone around us is splashing and playing while we are unable to participate because of our wounds.
  • We will go through times when we can’t function and have to wait for more healing.
  • We will go through times when we have to adjust the way we do things.
  • We will forever bear the scar of our tragedies.
  • We will always have things that trigger reminders.

But we are not permanently injured to the point of being out of commission for the rest of our lives.

Our lives will never be the same. We will never be the same. But within that, we can make sure the tragedies in our lives are not wasted by leaving us incapacitated. And that includes the tragedy of the death of our child.

We can allow God’s love to wash over us, to heal us, and to take this change in us and use it against the enemy who brought death into this world.

And just think, all of our scars will disappear someday, both the physical ones and the emotional ones, when we join our children in that place where there is no more pain, no more sorrow, and all of our tears will be wiped away.

But until then, we need to remember…

Wounds heal so that we can continue living. Yes, our scar reminds us of what happened, of who was cut off from us, but it also reminds us that our life isn’t over. There is still more living to do, if not for yourself, then at least for those who love you and still need you in their lives, and for your child who is no longer here.

We can (and need to) learn to live with our scars in a way that honors our son or daughter, not in spite of our child’s death, but because of his or her life.

 

Are you looking for glimpses of hope in the suffocating darkness of grief after the death of your child? Join over 1,000 other parents who get a word of hope delivered directly to them every week. (You can easily unsubscribe when you no longer need the encouragement.)

Expressions of Hope is written by author, speaker and singer Laura Diehl. She and her husband, Dave, are the founders of Grieving Parents Sharing Hope (GPS Hope). Dave and Laura travel full time in their Hope Mobile (a 38-foot motor home) to be more easily available for speaking and ministry requests, including being invited to hold one-day GPS Hope & Healing conferences.

 

If you would like more information about Laura as a speaker for your next event or want more information on hosting a GPS Hope & Healing conference, click here.

 

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Is There Such a Thing as Grief Recovery?

Several years ago, in my searching for how to deal with my grief from the death of my oldest daughter, I came across an article called “Grief Recovery.” As I started reading it, I discovered it was for any kind of loss including jobs, moving, pet loss, death, divorce or any kind of breakup, starting school, etc.

It talked about how recovery is when we can have memories without the pain. I had a hard time reading it without getting angry. It is just impossible to compare grieving the death of a child to all these other things. I’m not saying those things are not painful and that there is not a level of grief involved, but this article was basically saying after you grieve the right way, you can move on with life and put the past behind you.

I might be able to move forward, but it isn’t by putting the death of Becca behind me! She will always be in front of me. Our children are our legacy. They are supposed to keep going when we leave this earth. Even if she isn’t with me anymore, I can’t leave her in my past and go on without her.

Even if we wanted to do so, the things that trigger us and remind us of our loss can come unexpectedly out of nowhere and bring back the memory, accompanied by unwanted pain once again.

I am a parent who took a lot of trips to the grave site for probably a year or more. One day while I was there, the med-flight helicopter flew over me. I totally lost it and found myself sobbing uncontrollably. Later, I wrote on Facebook about what had happened, and a friend told me it was a sign of PTSD (Post Traumatic Stress Disorder). I guess it made sense.

The last year and a half of Becca’s life she had around a dozen ambulance rides, because of her heart issues. For many, many months after Becca passed, whenever I heard an ambulance I would freeze in panic and my mind would immediately question, “Where is Becca?” And of course, there was always the realization of where she was, and the siren I was hearing was definitely not for her.

The first year of special dates is always difficult for anyone who has lost a loved one, but for a parent who has a child missing it can be almost unbearable. For us, Thanksgiving came first and brought with it the memory of how the year before, Becca had insisted on hosting the family, even though she was wheelchair bound. Then came Christmas, Becca’s favorite holiday, and then the pain of the first time she was not there to celebrate her birthday, and so on. Eventually it came around to the one-year anniversary of her death.

Everyone grieves differently, and I wanted to be sensitive to that. Some of the family wanted to get together and celebrate her life, and others didn’t want anything to do with that. I was torn, and to be honest I don’t even remember what ended up happening that first year for her birthday or the anniversary of her death.

The part I do remember, though, is a precious memory I now share with Becca’s daughter. That first year, my granddaughter asked what we were doing for her mom’s birthday. Knowing how some of the family did not want to do anything, I suggested I come to her school for lunch on that day and bring birthday cupcakes for the two of us. She was thrilled, and we continued doing it for a few years (until she hit Middle School).

What I wasn’t expecting was to have the second year be harder than the first! I see two reasons for this. First, I braced myself for those one-year markers. I knew they were going to be hard, so I tried to prepare myself for them mentally and emotionally. The second year it was more like I was caught off guard. I’ve been through this before; it should be better this year, I thought, so all of a sudden, those dates were here, and they just hit me like a brick wall.

Second, I was still in such a fog of unbelief the first year. So as the fog started to lift that second year, the loss was hitting me with full force. By the third year, it was more like a painful acceptance, trying to figure out how to live this new life without my daughter.

I feel like I need to say this to the parents who are still in deep grief. Do not look at any dates to see where I or others were emotionally in our grieving process and use it as some sort of a timeline to force on yourself. We are all on our own individual timeline and need to go through the process at our own speed. Yes, there are some “patterns” (for lack of a better word) that some of us seem to fall into, but don’t expect yourself to fit into that. Give yourself grace to walk your own necessary path. As long as you are putting one foot in front of the other, you will get there.

Grief recovery for a bereaved parent? No, not really. Yes, it is possible to get to the point where we can have memories without the pain. It happens gradually, but for the rest of our lives there will be times where the pain returns, because all we have are the memories of our child. The goal is to have that happen less and less, but it is naïve to think we will get to the point where we no longer feel pain within the memories and therefore have “recovered,” as the article I read suggested.

Like someone with an amputation, (which Becca had her leg amputated at three years old) we will never fully recover. But we can eventually learn how to live around it, adapting our life to that part of us missing.

If you don’t think it’s possible, that’s okay. Most of us thought the same thing, which is why we and others are here. We want to be that hope and light to you, like someone was to us.  So make sure you stay connected to those who are further down this path, who will always validate your painful loss, and share your memories, whether they come with tears, or a smile.

Do you find it hard to find ways to find comfort in grieving the death of your child? We would be happy to send you our list of thirty suggestions to bring ourselves comfort. Just submit your name and email address below.

 

Expressions of Hope is written by author, speaker and singer Laura Diehl. She and her husband, Dave, are the founders of Grieving Parents Sharing Hope (GPS Hope). Dave and Laura travel full time in their Hope Mobile (a 38-foot motor home) to be more easily available for speaking and ministry requests, including being invited to hold one-day GPS Hope & Healing conferences.

Laura is a national keynote speaker and has also been a workshop speaker for events such as The Compassionate Friends and Bereaved Parents USA national conferences, along with being a guest on radio shows, podcasts and other media channels such as webinars with Open to Hope.

 

If you would like more information about Laura as a speaker for your next event or want more information on hosting a GPS Hope & Healing conference, click here.

 

GPS Hope exists to walk with grieving parents through the suffocating darkness of child-loss, guiding them to a place of hope, light and purpose.
 We also support families, friends and coworkers who want to know how to support these parents both short and long-term.

 

 

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How God Uses Nature to Teach Us About Grief

A butterfly coming out of the cocoon is a beautiful picture of how working our way out of bondage and darkness makes us so very strong.

As parents who have faced the death of our child, we are that butterfly in a cocoon. But many of us don’t even want to come out. And if we do, we often don’t believe coming out is possible, as we feel too weak to keep fighting. But fight, we must do. Some of the strongest, most caring people that I know are pareavors (bereaved parents) who have fought their way out of their cocoon of bondage and darkness.

17. beautiful peopleThey are also some of the most beautiful and loving souls I have ever met. Many of them have a deep passion for an unexpected purpose in life to help others. My friends, Dave and Dee, organize runs to bring awareness to heart failure and donate the proceeds to various community organizations. Anne goes into schools to talk about bullying, after her daughter died by suicide in a school bathroom. Kelly started professional training for medical staff on how to help parents in the hospital with infant loss at birth. The list could go on and on, including my becoming an author to help other grieving parents find hope, light and a fulfilled life again after the death of their child, and my husband and I starting an organization to do the same.

If you don’t know our story, it was actually a 26-year ordeal. But to simplify it in one sentence, our daughter, Becca, died at age 29 on October 12, 2011 from heart damage due to one of the chemo drugs she was given at age three (along with having her tiny left leg amputated at that time) as part of her treatment for cancer. (Click here to read the full story.)

The first two years after her death were 17. first two yearsa blur of suffocating darkness and confusion. (And the second year was worse than the first year, which seems to be pretty normal for those of us who have lost a child from this earth.)

The next couple of years I started doing a bit better, but the fifth year was another weepy one. That Christmas, my oldest son purchased some oysters to be opened live on Facebook, and the pearls inside were mine to keep as my Christmas present. It was so fascinating to watch them being opened and to see the gorgeous different colored pearl in each one. I ended up watching other people’s oysters being opened as well, and felt a drawing to watch more “oyster shucking” when I had the chance.

While waiting for my pearls to arrive in the mail one day, I found myself in tears thinking about how deeply touched I was to be able to have something tangible in my hands to remind me of the hope I have that God keeps His promises to take something so horrific, and somehow (as only He can) turn my shattered life into something of beauty that was still valuable and worth living!

Right then and there, I knew I wanted to find a way to give this same gift of this gorgeous symbol of the HOPE we have in Him into the hands of other pareavors.

I found myself writing something I wanted to give to those who decided to join me in having an oyster opened; letting them know the pearl inside is something we can look at, reminding us that even though it feels like it, we did not die along with our child.

Here is part of what I wrote.

You hold in your hand a priceless treasure. Yes, there is a monetary value placed on the pearl(s) you now possess. However, it is so much more… 

…You have had something way beyond “an irritant” invade your life. You have had to face the death of your precious child. And now you have the opportunity to allow God to do a far greater miracle in you than He does in an oyster, which is to allow Him the time and tools needed to make something beautiful out of something so horrific. 17. make something beautiful

Yes, it can happen. Not only can it happen, but it will happen, if you allow the One who sees what you cannot see, and knows what you do not know to be at work, deeply hidden in your heart and soul, where no one else has access. He wants to use this tragedy to make you highly valued; a rare and valuable gem, glowing with His love and glory unlike anyone else on earth.

It took almost a year and going down several paths, but my dream of being able to offer this for others is now happening. Once a month, we have an oyster opening live on our GPS Hope Facebook page for anyone who wants a gorgeous pearl as a symbol of who they can become, after a deep tragedy, including the death of their child.

17. your rare beauty and valueYOU are a precious and rare gem. You may not feel like it right now, but as you continue on your journey, you will realize that yes, you are still valuable. And for those of you who are pareavors, it is because of the deep love you have for your child, that you can have hope as to your rare beauty and value because of that never-ending love.

 

 

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For more information on the Pearls of Hope event, click here. Note: You don’t have to be a bereaved parent to get in on it. Anyone can purchase an oyster to be opened just for the fun of it, or as a gift for someone who would appreciate watching their own oyster being opened knowing the beautiful pearl inside is theirs, or because you want to be part of bringing finances to help GPS Hope be able to reach out to more grieving parents.

 

Expressions of Hope is written by author and speaker Laura Diehl to bring hope, light and life to those struggling in darkness after a tragedy, especially bereaved parents. If you would like more information about Laura as an author or a speaker for your next event, click here.

GPS Hope exists to bring hope to parents who have suffered the death of a child, acknowledging their unique grief with support, connection and education for them and those around them.

 

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My Daughter is More Than Just a Tombstone

When I go to the cemetery to visit my daughter’s gravesite, I see many tombstones closer to the front of the cemetery that never have any decorations or any visitors.  Why?  Because they have been there for so long that no one knows who they are to miss them.

The truth is, whether I like it or not, many years down the road, that will also be the case with my daughter’s grave, and mine, and yours, and everyone we love.

If you are like me, I have no idea who my great-great-grandparents were.  I have the names of some of them, but never actually met them.  I knew some of my great-grandparents in my childhood days, and even fewer of their siblings.

12. darkness and bitternessIt can make me cringe and feel sick to my stomach when I think about the possibility of people forgetting Becca. I don’t care so much if they remember me, but I want them to know who my children are when I am gone. I am guessing you are the same way.

So what do we do? How can we make our children more than just a tombstone in a cemetery? How can we let others know our child was here, and make sure his or her legacy outlives us, even when their time here on earth did not?

The first thing is getting to a point where we want 12. honor your child with your lifeto live in a way that honors the life of our child. Our grief is real. The suffocating darkness takes over, and we have no choice. But at some point (often two  or three years down the road) we see a glimmer of hope that we actually can have a full life beyond the death of our child. When we begin to realize that, we have a choice to make. Am I going to live out my life in a way of hopelessness and despair that honors the death of my child, or am I going to find a way to rise above this darkness and live my life in a way that honors the life of my child?

I hope you can see that choosing to remain in a place of darkness and bitterness, which keeps us from living out our own lives, will not serve the purpose of honoring the life our child was given, no matter how short it may have been.

Once we make the decision emotionally to fight to come out of the dark pit of grief, so that we can find a way to honor the life of our son or daughter, we can begin to see how to do that in a practical way. (And let me add that I am not talking about the sadness and waves of grief that will overtake us at times for the rest of our lives. I am talking about choosing not to remain in that place of suffocating darkness when we start seeing hope and light again.)

Here are just a few thoughts:

  • A memorial brick – our local Rotary Gardens has a memory lane where this can be done, as well as Lambeau Field (where the Green Bay Packers play, a team of which Becca and our family are avid fans)
  • A bench on a trail – we have an “ice age” trail through our entire state, and people can have a bench put along the path with a plaque honoring the memory of a loved one
  • A tree in a park – there are many parks that would love to have a beautiful tree planted and will allow an “In Loving Memory Of…” plaque to be placed at the foot of it

All three of these can be a second place you 12. Find a placecan go to remember your son or daughter; a place that will help you reflect on memories of their life, as opposed to being in a cemetery (or staring at their ashes in an urn) which tends to cause more painful thoughts of their death.

My husband, Dave, and I had the opportunity to do something quite different.  I was a leader in an international ministry for many years, which has taken me to Africa several times.  This has given me connections and friends in several African countries.  Dave and I wanted to find a way to better the lives of others, as a way to honor Becca and keep her memory alive. We gave money to some friends who lived in the extremely poor country of Burundi. They passed the money on to a family to start a little kiosk type store to support their family.  As far as we know, their business is still going and bringing this family in Burundi, Africa, hope and life!

12. things we can doSomeday, all of us who are alive right now will be long gone, and eventually, no one will be left who knew us.  But there are things we can do to make sure our children will be thought of and remembered by many, extending beyond our own lives when we leave this earth to join them.

I refuse to let Becca become nothing more than an undecorated tombstone when I leave this earth. I am going to make sure her life and legacy live on for others.

How about you?

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If you would like more ideas on ways to honor your child, just fill in your first name and email address, and we will send it to you. (Be assured, your email address stays with us and is not given out.)

Expressions of Hope is written by author and speaker Laura Diehl to bring hope, light and life to those struggling in darkness after a tragedy, especially bereaved parents. If you would like more information about Laura as an author or a speaker for your next event, click here.
GPS Hope exists to bring hope to parents who have suffered the death of a child, acknowledging their unique grief with support, connection and education for them and those around them.

 

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